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My Paradise in a Bubble: His best interest!

Tuesday, September 9, 2014

His best interest!

from "Autism Discussion Page":

"Emotional world on the spectrum! The "delayed effect"

Many people see this delayed effect once the child comes home from school. If they are strong enough to "hold it together" at school,

then the stress comes out as soon as they come home.

When the parent approaches the school, they simply report that the child is doing well there.

However, these children need the same supports (less demands, sensory diet, frequent breaks, physical activity, etc.) as the child who acts out frequently at school.

We must realize that "holding it in" can be damaging to the nervous system, and take a great toll on the children."

YES YES YES YES... THIS!

This on every level ....... and when he is at his weakest, he just can't hold it in any longer- because

it takes a huge toll on his nervous system, on his body, on his being

and he just can't do anything at that point!

We must never push our children to this breaking point of existence just to prove to "others" "schools" "whomever" that there are real issues!

Trust me, sometimes things get so bad, you might just not ever "recover" what spirit he had before!

It is traumatic, it is damaging, and sometimes, irreversible!

We will NEVER sacrifice our son's well being to "prove" to others that there are issues!

And had we known the depths of his trauma, we would never had agreed to "try school ONE MORE TIME" almost 3 years ago!

We have never ever seen that happy spirited playful boy since- sometimes we see glimpses, sometimes we get small moments, but that's it!

We had worked years to get Ty into a good place, a place of him coping, a place of him being a little boy, a place of well being, a place of healthiness, a place of happy

and literally in less than 2 weeks of being in school all day everyday, it was gone!

And we saw behaviors that we had never seen before, aggression we had never experienced before, and absolute despair by him.

And yet, on advice legally we were told we can't pull him out now, "they" need to see it, "they need to know how bad it can be"

Worst mistake EVER

And NEVER EVER again!

Why do "others" professionals, schools, just others never believe the parents!????

Why would we make up a story like this?

In my wildest dreams I couldn't create a story like this....

and it's what we live every single minute of every single day!

but I will never let anyone "sway" what we know about our child

And this I know.... and this I pledge to him- we will always have HIS BEST INTEREST first and foremost!

Because if we don't,

Who will?

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