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My Paradise in a Bubble: We don't need anything other than love and support

Sunday, October 5, 2014

We don't need anything other than love and support

He's asleep! He's quiet! He's peaceful! He's sweet to look at!

Tough weekend for my little guy!

Not only was it "the weekend" which throws a wrench in the "routine"

but daddy had to work in the morning of Saturday

then mommy was gone most of the day once daddy arrived home because I was working at the theater for Megan's performance!

That is what we call a "double whammy!

But with some of us out of the house, that's one positive - it makes it less stimulating environment!

And the day certainly could have been worse!

In fact, when I checked my phone before the show started- I saw that home had called!

of course, I"m always quick to think- oh no!

So I called back and there was Ty's voice on the phone

and I have to say, there is something about his voice on the phone- he may be 10 years old chronological age

clearly developmentally he's NOT

and on the phone, he sounded so sweet, and so little and reminded me of when he was 4 or 5!

It did melt my heart- he's so cute talking on the phone (which by the way is a fairly new "experience")

He has started wanting to call mom or dad when one of us is out to tell us "something of great importance of course or to say what someone is being mean - his perception when he doesn't get something he wanted when he is in a more regulated state of mind"

It's cute and funny and of course I would never dare say that to him- that would flip him inside out!

But again, his sweet voice when he's talking on the phone, and you are on the receiving end - it's heart melting!

Anyway, we definitely threw some big holes in his already unstable mind set from this week and well, waking up this morning wasn't even a little bit comfortable- but he without incident now is back asleep!

NO fits, no tantrums, no meltdowns, just laid his head down on the dog bed, in front of the TV watching sports highlights, and quietly went into slumberland!

How great is that... just what his little body needed, and more importantly he didn't fight it!

It didn't overwhelm him, he just went with it rather than resisting it!

That's a good thing! A very good thing!

After Brian had the appt (since Ty wouldn't go) at psychiatrist, and she believes he has outgrown his current dosing regimen for the meds he's on, which makes perfect sense when we see behaviors, agitation , occurring when environmentally things are improved- we just know these things... so increasing the dose of one of his meds - which will hopefully help him with his mood, irritability which then sends him into meltdowns- and then we in one week will be trying a new med. It's a bit scary to think about "trying" a new med- but we are at that point.... he's just not functioning in our home environment, everything is difficult no matter what... it's time to "consider" something different! That will start next weekend... don't know what it will bring

But we have to try something....

We are committed to him, will never give up, and trying medications at home is priority rather then "placing him"

People can suggest that to us till the cows come home

That right now is not an option for us, and I love love love that my wonderful husband advocated on his behalf and in only a few words said "but he craves love, craves snuggles, that helps him- and needs that - he is our little boy, he needs us!" "somewhere else, there is nobody to love him the way we love him!"................

what does the future hold, who knows, he is only 10

and no matter what, we don't believe that would be a better situation

no matter how hard things are, and can be

we are in a funk, but we always know, it will improve

good moments come with bad moments and good moments will fill us up once again!

People just don't think we can sustain "our bubble"

but as hard as it may be, when you see him thrive, shine, grow, my goodness it fills us up with hope and confidence that we are providing what "our child needs"

Even if it's not typical, even if it's not easy, even if it's frowned upon by others because they simply "don't get it!"

None of that matters- we get it- Brian and I get it!

And why on earth would we not do everything in our power to help our son- we simply would, we simply are, we simply will continue!

Family looks different for everyone- this is what our family looks like

please don't judge!

Please support with a simply smile

we don't ever need criticism, we don't ever need harsh looks or words

we don't ever need anything other than love and support-

and on that I will end ..... it's been a whirlwind week, a whirlwind weekend, my head as you can tell is spinning with my own thoughts, emotions

and I'm going to take this time while he is asleep to gather myself, ground myself, to take on the rest of the day and what ever it presents to us!

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