We start off this weekend with RAIN
my boy waking me up at 7:30am politely asking if we can make pancakes for daddy
and before we could eat them - he's back asleep!
This is the first morning he has taken a nap in well over a week!
Lately it's been an afternoon event
I swear just when you think you understand and he switches things up on you ;)
But another switch was how he woke up this morning
my dreaded saturday, which is tough because it's different then Monday thru Friday, everyone is home, daddy is home, everything is different
therefore behaviors, and everything being a struggle...... but today
Ty has decided to switch it up on us and well, things were definitely calmer for him
despite it being a saturday!
That is a good change up!
On Wednesday we increased the dose of his Memantine, he wasn't appearing to have any side effects and the low low dose just didn't seem to be doing anything- so psychiatrist said go ahead and double it to 7mg
(which is great because I' m no longer having to split a capsule!
That is not easy
It's been 4 days.... on a scale of 1 to 5... one being a really really hard day and 5 being a really really good day
day one was a 2, day 3 was a 3 and day four
I would say a 3.5.....
so moving in a good direction
maybe the med is working? It's always so hard to say
If we see a continued increase in good days, then maybe
just maybe?? the Memantine is having a positive effect!
I hope so, but we've also been down this road before... esp when meds are proven to be effective, but in my boy
it's different, esp the side effects.. he simply cannot tolerate so many
but when brain chemistry is OFF
no therapies in the world can help until you get that under control, that is the challenge!
But maybe it will be different this time, maybe even just a little bit??
again don't like to put my hopes on the line
as we try and continue to do the very best we can for him
and we'll never stop
but the past few weeks I'll admit
has been purely EXHAUSTING!!!
and stressful, and simply really really hard
and I can't even imagine what they must have been like for him
I"m sure about 1000 times worse for him
and as frustrating as it is for us, can you imagine how frustrating everything must have been for him
so, we the rain has come down
and now the sun is shining
we are starting off this weekend in a very nice way
don't know if it will continue, but at least it's a start!
No comments :
Post a Comment