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My Paradise in a Bubble: Behind us for now..

Friday, August 1, 2014

Behind us for now..

Well, yesterday is finally behind us....

that was a very hard morning for Ty, to say he fought us the entire time to get to the hospital is well

an understatement....

I swear that boy's survival instinct is beyond super human!

Which I guess it has to be in order to endure the things he's had to in his life!

But man, certainly makes things very hard for us- thankfully the hospital surgery center staff know us and him so well, so when I call them at the time we are supposed to be there

to let them know we are having a very difficult time getting him there- and we are still home

well, to have others be patient and empathetic is just nice!

We are already pretty stressed at this point- because when Ty doesn't want to do something....

and especially going to the hospital.. to him it's like "bring it on"

And for some reason, tells you how different each day can be for him,

our usual pre med regimen that we have been doing for the last 4 visits and has worked

never had an impact on him

and if it did, it tells you how "heightened" his survival instinct was

holy that was so hard!

but I know I say this a lot, Brian and I

we make an awesome team

someone needs to make up 2 superhero characters who are an awesome badass team

and not that we are fighting or taking out bad guys

Nope, we are a superhero team of love, compassion, patience and advocacy for our son (and all our kids)

But especially in a situation like we had yesterday morning, Ty hid himself under Sarah's bed

and damn that kid new exactly where to wedge himself- under a bed, that is not easily accessible except through a tiny hole

and Brian and I put on our capes, I counted to 3 and lifted the bed

while Brian gently pulled Ty out from under

we know he is scared, that is the only reason he is fighting, he doesn't really want to hurt us- but that survival instinct doesn't allow him to think, to rationalize, to help him stay calm..

nope, it puts him in complete fight or flight- and he was trying his hardest to do both

but once again our dynamic duo of Mr. and Mrs. took the situation over, kept our boy safe, kept ourselves safe and got us (somehow) to the hospital

It was certainly not an easy feat... but we did it!

But it breaks our heart every single time to see hims struggle like that, to know how scared and afraid he really is

and with good reason,

the boy has been through so much in his short 10 years on this Earth

and unfortunately it just doesn't seem to ever get easier for him!

But in the end, it was all successful, he is cleaned out for the next 6-8 months and I know he feels better!

So, we'll move on, that day is now behind us, and I hope he can get focused on something positive today

and allow us to be a part of it!

And if not today, maybe tomorrow... we'll be patient.

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