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My Paradise in a Bubble: Want to know what is hard?

Friday, December 12, 2014

Want to know what is hard?

Want to know what is hard?

Always waking up in the morning to "unknown"

Unknown of what Ty's behavior and mood will be

Is he in a good mood?

Is he in a bad mood?

Is he manic?

Is he depressed mood?

Is he exhibiting lots of anxiety?

Is he happy, is he calm, is he tired, is he tolerating "his world" around him?

Every day, we never know, everyday it's something different, and as much as that sucks for us, his family who loves him and is always surrounding him

Imagine what that would be like if it was you?

That must make things really really challenging!

It must make things scary when you, your own body and mind, can't grasp and hold on to the world around you.... and it's just spinning and spinning

This reality of our world, of Ty's world and us that are always watching from the outside in... him on the inside watching the outside around him

must be hard!

No other words to explain it, because in reality, I cannot even dream what it is like for him!

And what's even harder, is we just don't know how to help him when it's hard!

We're trying, we'll always try, we'll never give up

and believe me, it's hard

but we'll keep trying!

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