My real life super hero........

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This is for my little guy! Because every minute of everyday is a battle for him. But he is a real life super hero!

Future Vet?

Love the mornings where he's so engaged, being creative, and today he was a Vet. This is him giving Oliver an IV.

It's sad he knows what an IV is, but it's also very therapeutic for him to Play this way.

He also has a teddy bear with a cecostomy button just like his. He used to have his teddy bear have his potty flush when he did.

He played this way a lot when he first got his "button" as we call it. Not as much now, but he does love to play Vet and take care of the dogs- and also sets up all his stuffed animals to take care of them. Love this!!!

It's a happy Friday over here. Day three without major behaviors. A good way to start off the weekend.

Bonus for mom.... my brother in law brought over 2 truck fulls of reclaimed lumber. woo hoo!!!!!

Cannot wait to get started on our next projects.

However, hubby about had a heart attack when he saw all the wood on the driveway! I always get lectured when I agree to take someone else's junk as he call sit.

He doesn't quite see the beauty in wood that would otherwise be thrown into the landfill. It's beautiful wood that I can't wait to get started on a project.

There is so much, I"m supplied for months! Way to go brother in law! I have lots of Christmas gift ideas!

Happy Weekend!

My little vet....

That was scary.....

Less than twelve hours ago, I was celebrating the last few great days we've had. And even today- a pretty good day. He and I working on the finishing touches of the deck I built this summer. He was engaged with building something for daddy and just was being creative. Rest of the day went smoothly, transitions went pretty seamless, when issues did come up, he even set the timer himself for five minutes then went into the hammock.

Then night time hits- I hear Brian yelling for Ty. No response. I call for Ty. No response. We both wonder, where is he? Did he leave the house? Was he hiding? Was he in the garage and didn't hear us? Not that we begin to panic, but you do begin to wonder, why is he not responding? Where is he?

Then as parents you have the "oh crap" feeling. He's not responding, we keep calling for him. We know all his hiding spots, but he's not in any of them. Brian decides to jump onto his bike and ride around the neighborhood. I call for him outside. I call louder for him outside. I'm now wondering- what the heck do we do? Has he left our house- gone somewhere? I made sure the bikes were all still locked up. His bike was in the garage. Then after a few panic moments of what is our next step, here he comes. He comes up to the front of the house, looking at me like "what, I was just hiding under the neighbors car!"

WHAT!!!!!!!?????

You were where? Hiding under the neighbors car? Why? never mind why- that is very dangerous. And we breathe a minute. He's home. He's safe. But apparently he's mad at me. Okay, again these are the imaginary ideas he gets in his head and reacts and the rest of us have no idea what he is talking about.

And guess what he said- because you haven't bought me a Halloween costume yet?

Oh no, please not this again!

Where did this come from?

But we ignore the statements regarding Halloween or costumes, or anything related.

That was scary. He has no clue how scary that was for us. He has no idea the danger he put himself in, hiding under a car.

This was not a good moment.

And just when I think we have everything covered as far as behavior plan, action plan, what if scenarios- him leaving the house at night, when it's dark, and deciding to hide from us; never a thought in my mind.

He's usually too scared to go outside when it's dark.

Guess we'll be discussing our plan tomorrow with the behaviorists in case he decides to ever do something like this again.

Which I pray he doesn't. But I know the reality.

We did it.......

A little victory dance going on over here. To celebrate 2 days in a row of no behaviors.

Not hitting, no throwing, when he did get upset we offered two choices- dog bed or hammock to calm down. He did! This is what it can be like if every star in the universe was always 100% completely aligned.

Problem is this doesn't happen very often. This is that 5% of the time we see our son for his sweet, smiling, joyful little self. Pure self. It's the other 95% of the time that all things are just too difficult.

The world assaults him, his mind, his body and he still has yet how to handle it without anger, being physical. This is why I know our bubble world works. It always has- since he was little little. This isn't by accident.

Look what happened when I started to take Sarah to and from school. Nothing else. Simply one way to school, and one way home from school. It seems to simple to others. But when everything external bombards your body you just want to crawl out of your skin and escape. And that's what he tries to do.

This is the same little boy I was writing about just a few weeks ago- when things were so tough. Me having to lock myself in the bathroom for 45minutes until our behaviorist arrived. Me having to run out of the house because he's threatening me, over what? does it matter- does anything warrant this kind of response ever. Never!

But now look at where he is. His beautiful self, content with his existence. Wanting to engage, wanting to learn, wanting to be a little boy. So for anyone who wonders how we do this- this is how!

And this is why..... And this is a moment that I have in my memory to remind me why we do this! This is the little boy we are always trying to help, always trying to bring out into this world.

Rather than him retreating into that other world that is so dark, scary, and just like a closed box.

Happiness is.......

Happiness is hearing your son talk as he's making a pizza crust, reading the directions, talking through the directions, hearing little sister offer information on where something may be- and him saying "thanks!".

Now that's a moment!

He wanted to make pizza, so I gave him the GF mix we have and set him free. He is off and running with it- can't wait to try it! He never ceases to amaze me.

An awesome sleep picture