Tuesday, October 8, 2013

A glass of wine...

Well, upon transition into the house after playing football- he served us up a glass of wine.

So far so good! Again, no idea how he knows how to open a bottle of wine. I didn't learn to until I was like 30. But he does. So, nice gesture from my little guy.

Oh and he wanted to watch a movie while sitting in the HAMMOCK SWING- yes!!!!!!!!

I'm going to take this victory and love every moment!!!

It's now 7:00pm, still have dinner, potty, and bedtime-

but so far it's looking good!

No more disassembling...........

So we are on Tuesday now. A good day overall so far. He's been more mad at the behaviorist than at me. But I do not understand how he gets some of his ideas. He got made at L the behaviorist. Decided to lock us out of the house.

Again, no big deal, I have keys if we need to get in. But it is also a sign that he doesn't want us around. Fine. But what he does next - is an ugh moment. And I didn't even know he did it until a while later. He locked the front door. But then he took a screw driver and attempted to take the dead bolt off. I'm not sure what he was trying to accomplish. Except he did get the back of the lock off (inside the house) so it was stuck.

He was wanting my attention as L was leaving. This is transition time. He was a little short with me. But I was just being patient, so that he would not escalate. Until I saw what he did. I said, what is that all about? He just said oh, I was trying to take the lock off. NO>>>>>> I told him he had to fix it.

He attempted to. He was trying and I saw that.

I knew he wasn't going to be able to do it- I wasn't sure I was going to be able to do it.

But these are the moments that frustrate me so much- because now I"m going to have to spend the next 30 minutes or however long it takes me to figure this out FIXING what mess he created. He finally said this is all I could do and went in the other room.

At least he tried. Now make room for mom and I have to see if I can fix it! I did eventually- it did take some time. But I hopefully got it back functioning again.

But when he wanted my attention I was no longer available- this is one of those bummer moments. Shouldn't have tried to disassemble something :)

But as of 6:00pm no major behaviors, no restraint, don't even think he's thrown something at me. Pretty good by my standards.

We'll just have to see how transition from outside football time with dad goes, dinner, potty, bedtime. But I"m hopeful.

He's been coping better today. Even using his words to tell L to go away.

Well, we all consider that socially acceptable. So yeah!

It's the name calling, yelling, behavior to say go away that isn't acceptable. So again, a positive moment. He didn't want her around, so he simply told her that. Okay! Way to go!

Just hope we have no disassembling of "things" that I do not approve of. Because sometimes I"m not so handy at putting it back together.

We never know what that one is capable of.

He's smart I tell ya!

Monday, October 7, 2013

Just one day...... please!

A regular Monday- Ty takes a morning nap, behaviorist comes at 10. A few behaviors at transition. Then he gets settled. I tell him I will play football with him for twice the amount of time that he goes in the hammock. (A good sensory pre-load as we call it). I make it fun for him. He ends up staying in for about 8 or 9 minutes. So, I told him twenty minutes of football with Mom- and then I have to get to some of my chores. No negotiating, no tantruming about wanting more time. He just happily gets us all set up to start the game. Success!

I give fair warning when my time will be up. It's Monday, I have my laundry list which includes laundry of my chores to do. I don't have a house cleaner. I don't have a cook. Among many other things, like a lot of moms and dads, I do those things. Some how I try to fit it in between activities with Ty through out the day. So my time was coming up for me to stop playing football and go tackle my chores. He negotiates. He asks for the last play and touch down. I agree. He did ask nicely! That's functional language. I knew it would only be about 3 more minutes. So perfect. We make the last play- touch down T bone (that's his nick name... when he and dad are playing football!)

Then something happens. Not sure exactly what. Something between he and the behaviorist. He is upset and talking rudely to her. Still not sure what the issue was, but the reality is there usually isn't- he makes an issue of most things and that's just how things are. But he storms off, throws the football at her- it lands across the street. And says he is going to lock us out. Fine, I have a house key- as I literally always have my purse on my at all times. So he proceeds to lock us out- but that's alright- we just hang out in front yard. And then he approaches us with a screw driver. Trying to threaten us. Trying to say he is in control. We ignore it- we call this posturing. Kind of like a wild animal- puffing himself up to appear bigger then reality. He starts to just fiddle with the screw driver- we again ignore him and continue on our business. There are the times that I can tell he means way more serious business. And then there are the times I can tell he's not really that upset and out of control and will recover quickly. Because in the end he wants our attention. He needs our attention. And in deed, he literally flips the switch and wants to "do something". He walks across the street on his own to get his football that he threw. Good- we didn't even have to ask. That's part of our behavior plan- he needs to "pick up, clean up or get get" whatever was thrown, etc during a behavior. We all go inside- he and A the behaviorist decide to bake something. They decide on Zucchini bread- of course DF and GF. Perfect- great calming activity for him. I gardened a little bit while they were busy at work in the garden. He's laughing, he's talking, he's asking questions about the next step. This is going great!

The rest of the day goes pretty much as well as this last part of the morning. It was great. He even did a little better today during the transition of Sarah coming home. He eventually fell asleep- again. The days things go well, it's usually a 2 nap day. It's hard to stay focused, on task, be flexible, communicate. It's pretty exhausting to a little system.

He wakes up, daddy is home now. He wants to play football with daddy, as they do everyday after work. This is the routine- and it's an expectation for sure by Ty. But Brian is a trooper and enjoys the time as well. But Ty decides he 's too tired to play, so they come inside to watch the football game. Well, this change even though Ty wanted to do it. It was his idea because he was too tired. About 20 minutes later, he decides he wants to play outside. But Brian has settled in, he's riding the exercise bike watching the game on TV. Ty was watching too. This is when things get hard. He has a difficult time sustaining a focus, or he'll go into major hyper focus. But the rest of us don't operate that way. It's tiring trying to keep up with his pace. Especially in the evening when all things are winding down. And so his focus went back to wanting to play outside. They didn't. Ty started in with behaviors. Unfortunately it did escalate pretty rapidly, requiring restraint. When he becomes aggressive and destructive- this is the only thing we can do to prevent someone from getting hurt. He had punched me in the arm, blaming me for Brian not wanting to switch activities. I"m usually the scapegoat for things. He gets mad at the behaviorists, it's my fault. He gets mad at Brian, it's my fault. He gets mad at pretty much ANYTHING, it's my fault. Good thing I love him:)

So, after about 45 minutes of the behavior, sobbing, crying, angry, all the different emotions. He calms down. We continue about our evening as if it didn't happen. Because this is just what things are like. When he's calmed down enough, the world just carries on. When he's in the middle of the behavior, it feels like the world stops for a period of time. Not to the girls- they continue on as if nothing is happening. That's how numb they are to his behaviors and meltdowns. And believe me, if anyone else heard the screaming, yelling, crying that he does, you would think we were torturing the kid. But we're not- we're simply just trying to help him gain control of his body so that he can continue on with the day.

So when it was over, it was over. We had dinner. He went on the potty actually really well. He watched the Dog Whisperer. And soon it's bedtime for all! Tomorrow will be another day, but I have to admit- I'm just praying for that one day we get through the ENTIRE day without hitting, kicking, throwing, threatening, major meltdown behaviors. Just one day- it feels like it's been a long time- honestly it has, since school is in session. So I'm hoping to go one day without the behaviors. A perfect day- no such thing. Just a day that he is calm enough to just cope with all the things that bother him and frustrate him. A day that he is flexible enough to get through the difficult moments that he finds so challenging. A day that we go from sunrise to sunset without the craziness that usually controls our world.

Just one day!

And if I ask for one day, I'll probably want another, and then another. Just like the story "If you give a pig a pancake". But let's just start with one.

Winnie the Pooh is a good way to start a Monday.....

Sunday, October 6, 2013

He's in at 9:03pm....

He came in sooner than I even thought he would. 9:03pm... and he's off to get into his own bed in his room. Well, at least this ended well- and not too late either. We figured it would go this way! Score for the parents!

He is so determined right now- but we're tired ..

Right now Ty has set up "camp" out in the front yard. For some reason out of no where he has decided he is going to sleep outside in the front yard by himself. He took his pillow, a blanket and a DVD player.

It first started out he said he was going to sleep in our little tree house in the front. He even ran an extension cord and plugged in a light. I"m telling you, this kid ain't dumb :)

But he decided it seems that the front tree house was just a little bit too far from the house. He is literally about 4 steps away from the front door- I guess that gives him more comfort. He did ask daddy to make sure the sprinklers were turned off. And wanted to leave the garage door open. We said no, that has to stay closed so no one steals our bikes. I guess he didn't think twice about if someone wanted to steal him.

But he is determined. He is driven. He is not going to be told he cannot sleep outside. Sure, I don't want him sleeping outside by himself.

We get so little sleep anyway that this kind of circus act at bedtime already sets us behind schedule. Do I think he'll really stay out there? No way. Brian is hanging out on the front living room couch, reading his book as he usually does at bedtime. And waiting. Waiting for the moment Ty decides he's had enough outside camping time, gotten cold, whatever will eventually drive him back in the house- because something will.

We'll just have to ride this one out. Hopefully it doesn't go on too long. We're all tired- as he got us all up very early today- and not in a good way.

But we also know when to pick the battle- and ultimately we know he'll come in- if we just wait it out a bit.

When you are a parent to a child like Ty, one who is prone to rages, meltdowns, has such a high need to control EVERYTHING, you have to really pick and choose where we can and should exert our parental control; and where we can relax and let him think he's controlling the situation, because in the end we know what will happen.

After all, we're pretty smart parents :) Or at least we are good at making it up as we go along! Isn't that what parenting is about? Bets are he comes in by 9:30pm.....

Happy togetherness over football

Well, I have some happy "men" hootin and hollerin' from the family room. Some amazing dad son bonding over football. Love that they enjoy this together. Rooting for the niners- yep niners fans here!

Ty even told me no girls allowed- this is for "men" only! Well, in that case I have other things to do anyway!:) But I love how excited he gets. I love that they can sit together (well he's up and down about every minute- it's not easy to sit and watch anything for extended periods of time). But I can hear him calling plays and doing re-plays.

Sweet moment.

Especially after being pommeled at 6:00am this morning- not the best way to start the day. But he's settled! Watching the niners with dad. Enjoying "men" time!

Let's go niners!